Personal Health Advocacy Portal

Navigate any diagnosis
with Vivacuri.

Name: Vivacuri
Brand: Vivacuri

Vivacuri comes from viva, Latin for life, and curi, short for curiosity. Put the two together, and the possibilities are endless.

Vivacuri is a personal health advocacy portal containing the tools you need to navigate any diagnosis, your vocabulary, your care team, your plan, your documents, all in one place. Built by patients, for patients.

Let's make your portal → See what's inside

200+

Medical terms in plain language

10+

Years of lived patient experience behind every word

Conditions with live vocabulary libraries

vivacuri.com · your portal

vivacuri

HEALTH ADVOCACY PORTAL

Jane Doe

🔬 Your Diagnosis

Hypermobile EDS, POTS & MCASComorbid

Dysautonomia — what it means→ vocabulary

Beighton Score: 7/9 (hypermobile)confirmed

Tilt table test — positive for POTS→ test history

👥 Care Team

Dr. Susan Chen — RheumatologistBay Area Rheumatology

Dr. Mark Osei — RadiologistUCSF

Sarah Knopp, BCPA — AdvocateActive

Next appointment: Jul 22, 2026Prep ready

📚 Chronic Disease Classes

Navigating Cancer with CuriositySession 3/8

Understanding Your Lab ResultsNext →

How to Talk to Your ClinicianComplete ✓

Insurance Navigation BasicsWeek 5

Peer discussion groupOngoing

💚 Support

Patient Advocate — Sarah KnoppActive

Resilience Coaching — monthlyJul 24

Cancer Hope Network — matched→ connect

End of Life Planning resources→ when ready

Medical Billing & Appeals→ get help

💬 Community

Welcome to the CommunityPinned

Ask: managing fatigue flares12 replies

Meet & Greet — Thursdays 6pmThis week

Matched with a peer, similar diagnosis→ connect

🕊️ End of Life & Death Doula

Advance Directive & POAOn file

Death Doula Check-in — biweeklyNext: Jul 29

Legacy & Memory Project→ in progress

Comfort Care Resources→ explore

📋 Your Care Plan

Primary Goal

Maintain stable disease while managing quality of life through treatment and active advocacy

✓

Pre-appointment brief sent to Dr. Chen

✓

T10 lesion confirmed stable — Jul 8 CT

Confirm radiation oncology consult for T10

Review Xgeva dosing schedule with care team

Inside Your Portal

Every tool you need.
All in one place.

Your Vivacuri portal is built by your advocate and updated as your case evolves. It travels with you to every appointment, every hospital, every specialist.

🔬

Your Diagnosis

Your condition explained in your language — clinical vocabulary, biomarkers, staging, and what every word your doctor says actually means.

Plain-language clinical vocabulary
Condition-specific term library
Biomarker and lab reference
Scan history and comparison

👥

Care Team

Every provider, in one place — with contact information, specialties, appointment prep briefs, and care coordination notes.

Provider directory with roles
Pre-appointment question briefs
Visit summaries and notes
Appointment history and upcoming

📚

Chronic Disease Classes

A structured education program for patients and families — built around your diagnosis, your questions, and your right to understand your own care.

Navigating Cancer with Curiosity — 8 sessions
Understanding your lab results
Insurance navigation basics
How to talk to your clinician
Small-group peer discussion and support — ongoing after the course ends

💚

Support

The human side of navigation — your patient advocate, coaching sessions, peer connections, and resources for when the medical system is not enough.

Direct access to your BCPA advocate
Resilience coaching sessions
Cancer Hope Network matching
End of life planning — when you're ready

📁

Your Documents

Every document your care generates — organized, labeled, and immediately accessible. No more searching for the right file at the wrong moment.

Medical records and imaging reports
Pre-appointment and pre-infusion briefs
Insurance and billing documents
Services agreement and care plan

Most Important

Your Care Plan

The center of your Vivacuri portal. A living document that captures your goals, tracks your progress, maps your next steps, and gives your care team and advocate a single source of truth.

Goals — short-term and long-term, health and quality of life

Action items with responsible party and target date

Summary of findings from your care team

Barriers — named, documented, and being addressed

Available advocacy services — what your advocate is doing

Updated every session. Yours to share with any provider.

Care Plan Preview

Goal 1 — Health

Manage symptom flares through daily routine

Continue beta-blocker and compression therapy for POTS. Track mast cell triggers daily. Confirm rheumatology consult.

Goal 2 — SDOH

Build a support community that respects my choices and sustains a meaningful lifestyle.

Joined a weekly peer support circle. Reconnecting with two close friends this month.

✓

Pre-appointment brief sent for Jul 22

✓

Tilt table test results reviewed

Rheumatology consult confirmed

Review of medications and side effects

Who It's For

Three ways in.

Vivacuri serves patients directly, advocates as a platform tool, and institutions as a navigation benefit.

We focus on what you want as a unique individual — you have options, and we are here to amplify your voice and your choices beyond the clinical path. Purchasing for a parent or a distant loved one is just as easy: we provide peace of mind when you are at one of the lowest times in your life.

For Patients

You deserve to understand everything.

Your personal portal — your data, your language
A BCPA advocate building and maintaining it
Access to the Chronic Disease Classes curriculum
A living care plan you can share with any provider
$50/month or included in your advocacy package

For Advocates

The platform that does the admin so you can do the advocacy.

White-labeled client portals — your brand, your clients
Condition-specific vocabulary libraries ready to deploy
Care plan builder with Medicare documentation support
Document management with HIPAA-ready architecture
Advocate license from $200/month

For Institutions

A navigation benefit your policyholders and patients actually use.

White-label platform — your brand, your patients
Per-patient licensing for specialty clinics and health systems
Structured patient data layer for outcomes research
Built by a PCORI Ambassador and Stanford PFAC member
MetLife launched this model — be first, not second

Built by a Patient

Sarah Knopp is a Board-Certified Patient Advocate with over 10 years of lived cancer experience and 160+ rounds of chemotherapy. She is the founder of Living Before Dying Corporation and the builder of the Vivacuri platform — because no tool like this existed, and she knew exactly what it needed to be.

She holds a BCPA credential, is a certified resilience coach, INELDA-trained death doula, PCORI Ambassador, Mentor at Cancer Hope Network, and a member of Stanford Healthcare's Patient and Family Advisory Council.

Curiosity moves you toward healing.

BCPA Certified Resilience Coach PCORI Ambassador Stanford PFAC INELDA Death Doula Cancer Hope Network

Work with Sarah →

"I built Vivacuri because I have been in the room
where the diagnosis lands —
and I know what it costs to not process
a single word being said to you."

Navigate any diagnosiswith Vivacuri.

Every tool you need.All in one place.

Three ways in.

Let's make your portal.

Navigate any diagnosis
with Vivacuri.

Every tool you need.
All in one place.